The International Congenital Lung Malformation Registry is an online registry of clinical cases of infants born with a congenital lung malfromation. The management of infants born with a congenital lung malformation is currently controversial, particularly for those who remain asymptomatic. Existing data that are used to guide treatment decisions are based mainly on relatively small retrospective series. We anticipate that by assimilating a large number of cases prospectively we will be in a position to better understand the natural history of this condition and address some of the treatment controversies debated by clinicians worldwide.

The registry launched formally in January 2021. We already have interest from over 100 institutions in over 30 countries around the world. We are currently inviting collaborators to contribute to the registry.

To register your interest in this project, or to receive further information, please click here.

You will be sent full information about how to set-up the registry at your centre, after which you will be sent login details for our secure online data collection tool.

The ICLMR has received start-up funding from the Newlife Foundation. It is run from the University of Southampton and Southampton Children's Hospital, UK.